Three Months

Nolan a couple weeks after we arrived
at Children's Hospital of Pittsburgh.

It is hard to believe that we have hit the 3 month mark since all of our lives changed. Of those 3 months (91 days to be exact), 87 of those days have been spent here at Children's Hospital of Pittsburgh. 77 of those days Nolan has been listed for a heart transplant. It seems like forever ago that we walked into the CICU. We felt so out of place and everything was so much more...intense then Hershey. We knew this was the place for us. I am thankful for each institution we have been in. Our transfers between Susquehanna Health's Williamsport Regional Medical Center, to the Children's Hospital at Hershey Medical Center and finally to Children's Hospital of Pittsburgh got us to where we are today. Nolan has a chance to live. A family is going to make the most selfless decision and let him live on with their child's heart. It is beyond powerful. We will never forget that child or how precious life is. Taking things for granted is a thing of the past. Being a better person, family member and friend is what makes you truly a rich person.

Nolan is continuing to do fantastic. We had a day filled with activities! He had his VAD dressing changed, broviac dressing changed and physical therapy.
During his therapy session we actually got him out of bed and onto a mat on the floor. We had to wake him up...so honestly, it didn't go so well, but we are going to continue working on it. She did sit him on her knee and let him put his feet on the ground so he could put some pressure on them. It was so cute and crazy to see him in a vertical position! It was adorable! Next we worked on moving him from left to right on his back. This movement gets him prepared for rolling once the VAD is gone (which he was doing prior to use getting here). We had a good session and have some new ideas on how we can provide him with some more endurance, so I am excited.

Tomorrow is NEW YEARS EVE! Matt is coming and I am so excited. It will be a great start to what I hope is a great year. I hope everyone has some fun plans to ring in 2014 with your friends, family and love ones. One of our best friends, Melanie and Vince Myers, are due to have a baby on January 1! I hope to be showing a picture of a new baby SOON!

ONE MORE DAY CLOSER!

#nhos
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