Nolan - Heart of Steel: New Date - OFFICIAL Heart Date - 1/24/13 - Day 102

Friday, January 24, 2014

New Date - OFFICIAL Heart Date - 1/24/13 - Day 102 - Update 2

Oh my gosh. The past three hours have been so nerve wracking. The weather has been kind of bad, I wasn't hearing any updates, wondering...did they not like the donor heart, is Nolan OK, did they forget to call me? Well, I just got a call from the nurse. The team with the donor heart is on their way and Nolan is officially into the procedure. The next call the nurse will give me is when the heart arrives. YIKES! I am just so thankful...THANK YOU GOD!

Mommy and Nolan before he went to the OR

I am sure most of you are sleeping, but I wanted to let you know where we are in case some of you are waking up, checking yours phones and wondering.

Once my mind isn't all over the place, I will give you the story on how I found out that we got the call. This is certainly not a fast process. I have been up now for 21 hours, my coming posts could get interesting.

Please keep the prayers coming. I will update with more news SOON! Thank you all for the support!

#nhos

2 comments:

AnonymousJanuary 24, 2014 at 2:12 AM
Sending prayers your way may god bless you and your family
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TreesaJanuary 24, 2014 at 3:25 AM
Yes I got up in the middle of the night and first thing I did was to check on Nolan..... <3 Sleep can be overrated...lol. There will be time for that later. Sending more prayers...
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About Nolan

Nolan was brought by Life Flight to Hershey Medical Center on the evening of September 30, 2013. Earlier that day he went to the doctor for typical cold symptoms and was then sent to Susquehanna Health's Emergency Department for further testing and breathing treatments. After having many tests done, an X-ray showed what was believed to be an enlarged heart. An ultrasound confirmed this condition and he was quickly transported to the Children's Hospital at Hershey Medical Center. It was believed that Nolan was suffering from a viral infection in his heart called myocarditis, which is an inflammation of the myocardium, the middle layer of the heart wall. After going through a series of treatments at the Children's Hospital at Hershey Medical Center and not showing any improvement, the team of physicians felt best that he be sent to the Children's Hospital of Pittsburgh of UPMC.

Nolan was flown to Pittsburgh on Friday, October 4. After several days of observation, Nolan was diagnosed with dilated cardiomyopathy. He was placed on a ventricular assist device (Berlin heart) which pumped the left side of his heart. Nolan spent 101 days on the VAD. He received the gift of life on January 24, 2014. We are forever grateful to his donor family for such a selfless act. As their lives have changed forever, so has Nolan's. They gave him a second chance at life.