Happy Friday everyone! Matt ghost writing for Cori tonight. Cori got to Pittsburgh this evening to find a very happy and active Nolan. He has had a wonderful few days and continues to make improvements towards his developmental milestones. Eating and mobility are both progressing in short order. Nolan sits several hours a day in his bumbo or with a little support from mom or dad. He also has remastered the art of rolling and can get himself from his back to his belly. Once there he is working on the sequential skills necessary to crawl. He pulls both knees and elbows underneath himself and looks up. I don't think it will be long until he builds the strength up necessary to begin moving around. It's all very exciting to see him turning back into a normal baby.
Next week marks our scheduled discharge date to the Ronald McDonald house. Nolan and mom are planning to head over Monday evening with support from Grandma Everett later in the week. We feel confident with the medicine regimen and the equipment that is necessary for the move. Should all go well Nolan will get his third biopsy on Tuesday, March 18 after which we may begin the planning necessary to return home. It's hard to believe that it has been half of a year since this journey started. I'm tempted to begin getting excited at the potential to reunite our family as well as our friends and family. That said we continue to try our best to focus on each day and the challenges that we come upon.
Best wishes to all. We can't wait to be back with all you in what potentially is the near future. Nolan is drifting off to sleep and I think Cori and I will sneak out for a late dinner. At the risk of sounding redundant my sincere thanks to everyone that has helped our family to weather this storm. It has been the most challenging time in our lives, and I don't know how we would have managed without our friends and family.
Matt
No comments:
Post a Comment