Well, Matt and I had a busy day today. First thing, we think Nolan is finally over the hump with the stomach bug. No throw ups today, less "blow outs" and definitely in better spirits. WHEW! No one likes a sick baby!
So, today was filled with appointments, all routine. We started our day by going to our primary care physician. It was strange walking in the office and being guided back to the same room where our doctor suggested I take Nolan to the ED because he was not happy with the way he sounded after a breathing treatment. That was September 30. The day that changed our lives. Needless to say, Dr. Wetzel was thrilled to see Nolan and we had a great appointment basically reviewing our medications, how often we plan to meet, how Riley was doing, how Matt and I were doing, etc.
After our first appointment, we had to get lab work done. We went to Williamsport Regional Medical Center's lab and were greeting by the staff of the lab. Thankfully we got a lab draw from Nolan on the first try and the whole process literally took us 20 minutes. We spent more time chatting with some of our co-workers at Susquehanna Health.
Next, we were off to Harrisburg to meet with our cardiologist from Hershey Medical Center. Dr. Dispenza actually was on when we were taken by LifeFlight to Children's Hospital at Hershey Medical Center. He was who told us before we left for Pittsburgh that he suspected Nolan had cardiomyopathy. We did not want to believe him, but...he was right. We will be using Hershey as our cardiology contact for those months that we are not in Pittsburgh. The first month we will probably have a cardiology appointment at least once a month, sometimes two. These will all space out as time goes on. While at the appointment Nolan had the standard EKG and echocardiogram...all of which look good. Now it is just connecting back with CHP. Our next appointment will be April 24 back in Pittsburgh.
ANNNND that was our day. Our evening was filled dealing with our crazy 3 year old daughter (love her, but 3 is tough!) and keeping Nolan entertained. Just a typical night with two young kids. When I get stressed about it all, I try to place myself back to where we were three months ago. At that time I was still praying for Nolan to receive the gift of life. And now, here we are. Adjusting to so much. Matt and I took in a lot from this journey...what is important in life and what is not. We do know even though life with two young kids is stressful and sometimes you just want to pull your hair out or run away (trust me, I was walking to my car the other day and thought, "I am just going to drive and get out of here!!")...they are what is most important. If we would have lost Nolan, we would do anything to have these stressful kid times. So, I am going to take it and LOVE IT!
WELL - back to work in the morning. I want to end by saying our home nurses from Bayada are AWESOME! Today they even contacted me to make sure Nolan was feeling better. We have a great team of individuals watching over and caring for Nolan...from central PA to western PA. And an amazing team of people that continue to pray and root for him everyday. GO TEAM NOLAN! We love and appreciate you all!
#nhos
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