We woke up to a smiling and happy Nolan this morning. No throw ups through the night, with the exception to one gag in the middle of the night. We also woke up with a happy Riley! So, it was a pretty smooth sailing morning.
Nolan had a better day. Some of his labs came back, and all are relatively normal. We are still trying to figure out the logistics of appointments. Nolan should still be seen by a cardiologist every two weeks. Since we just had one this week and our next appointment is in Pittsburgh on the 24th, he needs to be seen in between those two appointments by a cardiologist. With that said, we are just trying to figure out the when and where. We thought we lucked out by there being a pediatric cardiology clinic at our local hospital in Muncy through Hershey Medical Center, however the clinic sits right next to the ED (germs!) and the echocardiogram clinic is dated. Both of those issues we can't deal with, so we may have to simply go to the Harrisburg office, or to another clinic nearby. More on that later.
Amber, our nurse, told us that Nolan was in much better spirits today. They played, took a bath, went for a walk...all around a great day for him. I am looking forward to the weekend to spend time with the kids and family, and get stuff done around the house. His top front tooth is officially through. I think that makes 3 1/2 teeth!
One of our heart friends in back in the CICU. Little baby Cohen was having a tough time breathing and had to be reintubated. Please say your prayers for this little babe, as he has been in the hospital since the day he was born. I wish I could give then all a hug! I hear little Ollie is showing signs of improvement, however he still has a long road as well. Any prayers for these two young babies is greatly appreciated
OK - I am exhausted and the kids are drifting off. I am off to bed! The weekend is so close!
#nhos
Thank you for your posts. If you can, please let your friends in CICU know that they are in my prayers every day. I don't do big things, but little things in a big way!!! God bless you all.
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