And...Back to Pittsburgh

Sadly, yes...Nolan and his daddy are back in Pittsburgh. I was getting ready for work this morning when I got a phone call from our transplant coordinator. I knew it wasn't a great thing that she was calling first thing in the morning. She said that Nolan's liver enzymes through the roof and GI and Infectious Disease wanted him admitted. Not a fun start to a morning...

So immediately I was ready to pack a bag and had intentions for both Matt and I to head to Pittsburgh. But when Matt and I thought rationally about everything our first thought was Riley. She really has been struggling with us leaving her and we have worked hard these back 3 1/2 weeks to get her back on a routine and a normal schedule. Matt has time off work and it made sense for him to take Nolan and for me to stay back with Riley.

Our nurse was at the house when we got the call that Nolan needed to come back to CHP. I am so thankful because she drew up all our meds and packed up his feeds, medicines and all the other miscellaneous items that Nolan uses throughout the day. I took care of packing his clothes, blankets, diapers, etc. Matt took care of Riley. So, it was a good team effort. We got Matt and Nolan on the road by 8:15 am. Matt and I had a moment feeling defeated, but we got over it quick and went back into "GO TIME" mode knowing that whatever needs to be done for our little guy needs to be done.

You are probably thinking...what do high lever enzymes mean and how to you fix it? This could be simply from one of his anti-rejection medications. That was one of the first things they did. They removed his Rapamune medication. They will run a series of tests; ultrasound, blood work, etc. Hopefully from these tests they will figure out what the problem is.

Matt and Nolan got admitted around 12:30 pm. They are back on 8a with all the wonderful nurses that we love. I know they were excited to see Nolan, but of course no one wants him to be there. Matt has let me know that everything is good...Nolan is in good spirits; he has had some throw ups and blow outs. He did get his ultrasound and his liver looks good and seems to be functioning normally. Some blood panels came back favorably, also...so far, so good.

That is where we are at. I am playing everything by ear. With Easter coming up this weekend and the possibility that this could be a short visit, I am going to stick back home with Riley until we get a better answer as to what is going on. We are all OK and in good spirits. We are realistic that Nolan is still fresh from a transplant and this first year will have its rough patches. Matt and I do have moments that we feel life is dealing us a really crappy hand, but when you look at the "big picture" we are truly blessed. We have conquered so much and will overcome this bump as well.

We do appreciate the continued prayers and want you all to know we feel so grateful for having such an amazing support system helping us through these crazy times. More to come tomorrow morning!

#nhos