Finally A Little Peace

Thankfully we had a much more relaxing day than the past two. Nolan ended up having a pretty difficult night. He was very agitated and the nurse ended up having a chest X-ray done, as well as labs pulled. The X-ray came back normal; they were checking for any changes because of the biopsy. The labs will take about 48 hours to come back, however there was growth, meaning that he does have an infection. One of our transplant physicians, Dr. Lal, finds it a little confusing because he has not presented any physical signs on an infection, such as a fever. Because of that they pulled labs again, then started him on preventative antibiotics. They will compare the two labs that were pulled to make sure that the first lab wasn't contaminated. We should know for sure tomorrow or Tuesday on the status of the infection.

If he does indeed have an infection, it could explain where some of his agitation is coming from. They have also stopped the bolus feeds for the meantime, and we are letting him rest. We are now back to continuous feeds, and he has been responding well. No throw ups or heaving, and he was actually able to sleep through the day. The past 48 hours he really has not slept much. I am hoping he has a restful night. I am debating sleeping in the room with him. It's hard to leave knowing that last night he had a rough one.

SO, here we are...another BUMP in the recovery process. I think we will get this figured out and back on track once again. :) I am just anticipating that the first year post transplant is going to be a rough one. Lots of learning, stress, ailments...but, we have great support and a network of heart families who we can get advice from. I think we'll do OK!

Tomorrow is Monday so we will get back on track with therapy, maybe start bolus feeds again depending how the night goes, echocardiograms, EKGs, etc. We should also get our final report from the biopsy, so I can give the full explanation what that all means.

Nolan and I have had a pretty nice day. He is currently playing under his gym. We had a visit from Faith and her mom and aunt. YES! Faith actually came over to our room. We are hoping to get the two together tomorrow and take some walks around the floor. We will make sure to get some amazing pictures of our heart warriors. We are hoping Lydia can join us, too. She received the gift of life a couple weeks before Nolan and Faith. She had a few set-backs, but is back on track and doing well. So far this year they have done five heart transplants here! So many lives have been changed here in a short period of time.

Well, I need to go switch some laundry over and grab a little something to eat. Nolan and I have been watching really corny love movies all day on TBS and I see that continuing the rest of the night!

Keep the prayers coming! We are ready to get this recovery process done so we can come home!

#nhos
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