Never A Dull Moment

Well, not the start to a holiday weekend that we expected.

Yesterday Matt and I started our weekend off by having happy hour with some friends. Just a short time after we got home it was clear that Nolan was not feeling well. There's one thing for sure - when Nolan is not feeling well you can tell. He was lethargic, cranky, feverish and just wanted to be held. He also threw up several times. Matt called the on-call cardiologist at Children's and since it wasn't necessarily "life threatening," they said if we felt there was something actually going on it would be best if Nolan were to come there. So, off Matt and Nolan went around 6:30 last night. They got to Pittsburgh around 10:30 and Nolan was admitted. They ran some tests and right off believed that Nolan has an ear infection. He has had a low grade fever on and off all week - a lot that we attributed to teething. So right away they started him on some antibiotics.

So, Matt and Nolan had a long night. Matt gave me the play by play throughout the night. Nolan's liver enzymes are still trending on the high side, which has caused concern for the transplant doctors and our GI doctor. Over this past week we discussed this with the team. Our plan of action is to get an appointment with neurology ASAP to discuss decreasing Nolan from the Keppra, medicine that prevents seizures. Once that was weaned and if his liver enzymes were still high, we then would switch his anti-rejection medicine, which currently is prograf. And if THAT didn't work we would then have to get a liver biopsy to get a further understanding as to what was going on.

Fast forward to this morning; Nolan looks much better. He is his happy self, despite a little sleep deprived. Nolan does have an ear infection and a little viral infection. Like our transplant coordinator and doctors say, Nolan will get sick. And the first time will be scary. Thankfully it is not anything to serious and we caught it very early. When Nolan isn't feeling good, you know. I know it seems crazy to run straight to Pittsburgh, but they know him best. It is amazing how far you will travel to receive good healthcare. Since they specialize in children with transplants, it is just where we feel most comfortable and confident.

SO, as we speak, Nolan and Matt are on their way home! Today Matt and I were to attend a wedding of some dear friends of ours, Pat Moriarity and Keri Matty...well, I THINK we may make it to the reception. YAY! We have been looking forward to this day. My parents are looking forward to watching Nolan and Riley tonight...then the rest of the weekend we are going spend at the cabin. So, I can't wait to see Matt and my little man. I have missed them both so much!

WELL - that is the latest in the McLaughlin world! NEVER A DULL MOMENT! Life is ALWAYS keeping us on our toes. We are looking forward to see some great friends tonight and spend the rest of our weekend with family. I will send an update tomorrow at the cabin!

#nhos