Anyway - THE LATEST.
Nolan was in the hospital at Williamsport Regional Medical Center last week from Wednesday evening until Saturday afternoon. It was nothing too major; he had been suffering from a cold the past three weeks, and I think around last Wednesday was the peak of this virus. He was having difficulties breathing, very rattly, fever, etc. We did NOT want to mess around given his history, so off the ED we went. Long story short, after many tests and blood cultures, they diagnosed him with viral bronchitis. Susquehanna Health's pediatric unit at Williamsport Regional Medical Center and Children's Hospital of Pittsburgh did an awesome job working together to make sure all the proper tests and treatments were being administered to Nolan. We are super grateful to have such a great support network.
We have continued to breathing treatments at home as needed, and Nolan is doing MUCH better. Not only that, he is eating like a champ (I think more than I do in a day!) Also yesterday he took 3 solid steps! I am pretty sure we are going to have a walker by the weekend. His vocabulary has really stepped up, as well. He is a talking machine (his own language, of course), constantly babbling and telling us stories. Milestone wise, he really seemed to develop significantly the past couple weeks. It is so great to see because I am always so nervous if he is going to have any deficiencies due to the strokes he had about a year ago.Nolan was scheduled to have another biopsy this coming weekend, however due to his illness it has been rescheduled. We will most likely be back in Pittsburgh mid-December. Until then, we will visit our cardiologist at the Children's Heart Group of Hershey Medical Center and continue with lab work as needed. Our PT and OT are thrilled with his progress. OT is working less with him on eating because he has mastered that, and more on cognitive skills. We will find out down the road whether or not he will need any other specialty services.
So, that is really where we are at. The rest of the family is doing great. We are definitely into a routine and thankful for where we are at. I have been writing this blog for over a year now; I started trying to read what was going on a year ago...and I really can't. Those feelings and that life we had a year ago is still so hard to even think about. Life is truly a gift and so precious. Even we have to remind ourselves of that after all we have been through. I can honestly tell you that I feel like one of the luckiest people in the world to be surrounded by so many wonderful people - this is what I never want to take for granted.
More next week!
#nhos
UPDATE: I wrote this yesterday and since then Nolan has successfully walked about 10 - 15 steps! So close! :)
